7/20/18

Current Adventures

I  wrote a post the other day that I didn't publish.  I'm very conflicted about what to say.  Some of it doesn't come off right in print.  You don't get a feel for the laughter and the peacefulness and the joy.  All it sounds like is crazy and I don't want people to think that's what this time is like for any of us.   

But, there is one story I know I want to tell.  Day before yesterday, Linda was talking to one of the nurses about Rob and me and this is what she said about Rob...yes, but he keeps bringing me the same breakfast tacos every day and I asked him for Round Rock donuts weeks ago.  (If you've never had a Round Rock donut, you don't know what you're missing) 

And, the nurse told Rob and Rob remembered that a few days ago, she did indeed ask for RR donuts for breakfast.  So, my husband, man that he is, took three dozen donuts to the nursing home yesterday and everybody in her wing enjoyed donuts, staff and residents.  They even saved one for me.  She was still asleep when Rob got there, and didn't fully enjoy the one he gave her.  But, when I got there, she asked for some poligrip and she attacked one with a bowl of mandarin oranges. 

Outside Linda's room, a lady stopped him and asked if he was Linda's son.  He said no, she was a very dear friend.  And, the lady said "you're here every day." and rolled on her way down the hall. 

Mary asked the other day if Linda had stabilized.  I didn't post that because I wanted to think about how to answer it. 

When Linda first got to the nursing home, we all thought she'd be gone in a couple days or weeks at best.  But, it turned out that the main thing that was killing Linda at that time was starvation, not cancer.  I don't know how long Linda went without food before she got to the hospital.  She didn't ask for help and nobody knew she couldn't feed herself.  And, when she got to the hospital, she refused to eat the hospital food.  She was finally so weak and drugged up that she ate what I offered her and she kept eating and after a few days, she was able to feed herself and she's been eating like a horse...well, more like a bird, but for Linda, like a horse, ever since.  So, she got physically stronger and we all enjoyed two weeks of relatively good health and great and frequent visits. 

And, it seemed that might go on for a while. 

But, on Monday, Linda took a turn for the worse.  Systems are shutting down and current events are getting...okay, strange.  Flying on a chartered plane from London to LA, and not knowing how we're going to pay for it (I told her she should tell them to just arrest her and see what they thought about that).  Landing in a friend's front yard and picking her up.  Being murdered on Monday and if I didn't stop them, she was going to be murdered again on Tuesday. 

She's still there.  She still knows who we are.  She knows what is going on right this minute.  And, she remembers the past with complete clarity.  But, what happened a half hour ago or last night is more of a dream.  But, she'll point at me and say point blank that this what she's about to say is not a hallucination, then tell me about RuPaul coming to visit.

Turned out, after several hours of indulging that, shift changed and she introduced me to nurse's aid Roger as RuPaul.  When I apologized, he said it was okay and not the worst thing he'd been called in that nursing home. 

This is what dying is like.  This is what it's been like all three times I've been this close to it.  The difference this time is that Linda isn't fighting.  She's calm and peaceful and happy and smiling.  And, as long as we control the conversation, we still get good visits.  She had a good life and we're helping her relive the best moments and memories of it.  And, as long as she's not in any pain, I'll talk about anything she wants to talk about and flip through her photo albums with her and talk about the people and places pictured there. 

But, don't ask her what city we're in unless you want to hear about the current adventure and go off on a flight of fantasy. 

Everybody have a great weekend.  This is our weekend to get ready for the new appliances that are being delivered next week.  Woo-hoo!  It's very important that we take care of ourselves now, too.

Lane

9 comments:

Megan said...

Thank you for sharing Lane. This is a very special time that you're sharing with Linda and I imagine that you and Rob are making a huge difference to how she is coping at this stage.

Megan
Sydney, Australia

Dot Wankat said...

Your posts about being a friend to Linda at end of her life are so helpful. Most of us are going to experience the same thing at some point and I work at absorbing each caring thought, including the value of a smart mouth at the right moment. Laughter is such a gift.

Comfort, conversation, and homemade goodies are others, as are honesty and hanging a favorite picture where she can easily see it.

Thank you so much for sharing how you and your family show your love for your good friend.

Rieann said...

You and Rob are wonderful friends to Linda, my wish would be that everyone in Palliative care could have such wonderful supportive friends at this time of their lives. Thank you for sharing this journey. Rieann from Western Australia

Anonymous said...

Thanks for sharing. We all can learn from your experience.

jane said...

If I were dying, I would love having friends like you and Rob. You are probably the most comforting to her in this time.

Becky said...

What a comfort you and Rob are for Linda! I am glad you are there for her.

Love you bunches!
Becky

Anonymous said...

Thank you for writing about the dying process. In our culture, it is almost never discussed. You and Rob are honoring Linda by being such good friends to her. I enjoy the sensitivity you bring to all your posts, no matter what the topic, and I read every word. Again, thank you.

Anonymous said...

I don't have the words to express how I feel, but the above posts say it all. Keep on doing what you are doing. The appliances will be with you until you choose to replace them. lum

Anonymous said...

I’m so thankful you’re sharing with us, Lane. It helps all of us readers. Mary